Sunday, April 19, 2015

My Dream about my ASL Talk

I've had dreams about giving talks in church before but the one last night was a first. I was at the branch (although it looked like my ward building) and started to give my talk. Someone closed the curtains. I'm not sure why there were curtains in the chapel but I knew it would be a problem. I mean, if the people can't see the signing, they wouldn't understand.
Then a handful of random people (I guess you could call them a mob) showed up and started shouting things. I wasn't sure what to do so I got off the stand and asked the branch president. He said to close your eyes and sing a church song in your head. It was so crazy and so real.

Sonja Cunningham Anderson From a psychology perspective that dream makes perfect sense to me. The curtains represent your fear they won't understand you, the mob represent being judged for not getting the signing right, the counsel is your answer from Heavenly Father in how to handle those two fears. I think you just had an answer in dream form.

Connecting the Dots

Bryce had speech therapy. Brenlee has been getting more mobile and I've been wondering what to do with her. I hate to get a sitter every week just for speech. It'll get more intense when Brayden starts speech too. The center for hearing and speech is awesome. The therapist said she could sit in the high chair. Bryce really loosened up (became more vocal) when this happened.
Bryce's device was turned on in January and he had "newborn hearing". He's now about at a 1 year old....right with Brenlee. They imitate sounds. It's so fun to see and hear Bryce imitate. He did this at dinner the other night when Brenlee babbled some tune. We KNEW he heard it because he babbled the same tune.
I'm not sure if the pattern will continue but maybe within a year, (again, assuming the pattern continues) he will be caught up in his ability to hear.

I was talking to a friend and she said maybe you didn't have Brenlee when you wanted so she could be here for Bryce. I hadn't connected the dots but it was a testimony to me that Heavenly Father knows everything. He knows what's best for us. I wanted her a year earlier but she came about the time everything changed. What seemed so hard at first, turned out to be a blessing. I remember questioning the Lord's timing on Bryce's hearing loss. Really? After I have a new baby? It was a struggle but now it's a blessing. 

Genetics Follow Up

We had our genetics appointment on Thursday. We asked questions and wanted to know a prognosis. They really don't know b/c the testing they did yielded zero answers. Dr. C suggested an Xome test that would dig a little deeper. We told him all of Bryce's "issues (GI, balance, optic atrophy) and he asked about Brayden too. I also inquired to find out if there's a way to know if the girls will also experience the same hearing loss. We really just don't know.

They looked at MRI pictures of Bryce's brain to see if maybe something wasn't developed. Everything looks normal. He's puzzled with Bryce's balance issues. They recommended that although he has outgrown his breath holding spells, we continue to see a neurologist yearly.

They asked permission to video Bryce walking up and down the hall. He said he'll meet with 10 other doctors and maybe one of them will have an idea he hasn't explored.